MBA Mommy

Part MBA, Part MRS, Part MOM…..All ME

Posts Tagged ‘special needs’

Welcome to the Club

Posted by mbamommy on December 1, 2011

Next up: Welcome to the Club.  Jess, over at A Diary of a Mom, is hands down my favorite blogger.  She makes me laugh and cry on a daily basis with her stories of her two beautiful girls, one an NT and one with PDD-NOS and pervasive anxiety.  Honestly?  I just want to hug her and grab a cup of coffee with her and chat for a day or two.  She’s THAT amazing. Please, click on the link and go over there and read her post. It’s well worth it.

Advertisements

Posted in ASPERGER'S, AUTISM, MOM | Tagged: , , , , , , , , | Leave a Comment »

You Might Be

Posted by mbamommy on November 29, 2011

So, along with this blog and Facebook, I dabble in Twitter. I can’t say that I’m a big user of Twitter. I tend to go in spurts, tweeting a lot for a week or so and then falling back on it. Honestly, with everything else I try to keep up with I just don’t have the time or inclination.

But there’s been a shift recently. A few weeks ago someone started the hashtag #youmightbeanautismparentif and I somehow got wind of it. And then, all of a sudden, my Facebook updates dropped off, checking my email dropped off and I found myself reading other parent’s tweets throughout the day. And tweeting like crazy myself.

Some of my favorites are:

@red_ambert #youmightbeanautismparentif helping another autism parent means just listening because you understand what they are going through.

@Jasonoldfield #youmightbeanautismparentif you have a therapy room as a living room

@diaryofamom #YouMightBeAnAutismParentIf the next person who tells you that God doesn’t give you more than you can handle might want to duck.

@trydefyinggrav #YouMightBeAnAutismParentIf you ignore the judging eyes of others and instead seek out the knowing nods of “us too”.

@helenhamill #youmightbeanautismparentif you wouldn’t change your child for the world- but want often to change the World for your child!

@KristinMacchi #YouMightBeAnAutismParentIf you’ve thought about including your ABA therapist in your family holiday photo.

@trydefyinggrav #YouMightBeAnAutismParentIf you are a first responder, teacher, therapist, event planner & financial planner rolled into one.

@DrKyle #YouMightBeAnAutismParentIf your child tells a lie and instead of getting mad you think, “Great! We’ve finally hit that dev. milestone!”

@ghkcole #youmightbeanautismparentif you prep to watch parenthood by getting a box of tissues

@robsavva#youmightbeanautismparentif you have to work out if they are being naughty or autie.

@hollyrpeete #youmightbeanautismparentif you are amazed at how much more compassionate kids can be than their parents #autism@HollyRod4kids

And a few I’ve posted myself:

@mbamrsmom #YouMightBeAnAutismParentIf you love that there’s more awareness for #autism #aspergers but hate that it’s because of more diagnoses.

@mbamrsmom #YouMightBeAnAutismParentIf scenes from next week’s #parenthood where Max goes missing terrifies you.

@mbamrsmom #YouMightBeAnAutismParentIf ur friend’s offhand comments abt their kid lining up their toys and not looking ppl in the eye makes you pause.

@mbamrsmom #YouMightBeAnAutismParentIf Dr. Temple Grandin is your hero

@mbamrsmom #YouMightBeAnAutismParentIf you know what a puzzle piece really means

@mbamrsmom #YouMightBeAnAutismParentIf you know what Steve Jobs, Albert Einstein and Bill Gates all have in common

@mbamrsmom #YouMightBeAnAutismParentIf a staycation is more relaxing than a vacation

@mbamrsmom #YouMightBeAnAutismParentIf weighted vests are a piece of everyday clothing not just for a workout

I’ve thought a lot about this list since I discovered it. I’ve read things that have made me laugh, made me cry and made me cringe. Some have made me think “Wow, them too!” and others have reminded me that it could be much much worse. I’m surprised by how many people are out there raising their voices and how much understanding and acceptance they have. I can imagine these other parents reading along with my same half smile on their faces and tears in their eyes.

What I find most striking is the sense that everyone has a love/hate relationship with this Twitter feed. We all seem to be saddened by the fact that it’s been created. No one chose to be in this club. No one truly wants to be involved. But, there is a need. And we’re all thankful as hell it’s been created. It feels like a collective sigh of relief to be able to take a step back from our day to day lives and find the humor in it. To laugh at the bittersweet-ness of it all.

So, go onto Twitter and do a search for #youmightbeanautismparentif.  You may be surprised at what you find.

Posted in ASPERGER'S, AUTISM, MOM | Tagged: , , , , , , , , | 2 Comments »

A Hairdryer Kid in a Toaster-Brained World

Posted by mbamommy on November 27, 2011

This is a series of posts written by MOM-Not Otherwise Specified.  She’s compiled all the links to the series into one post, which I’m re-posting here.  Post. Post. Post.  I HIGHLY recommend reading all of them more than once.  And, if you have a kiddo on the spectrum and want to speak to his/her class about autism, print these out and use them as a guideline.

A toast to inclusion: Autism education in the classroom

Posted in ASPERGER'S, AUTISM, MOM | Tagged: , , , , , , , | Leave a Comment »

Welcome to Holland

Posted by mbamommy on November 21, 2011

I’ve decided to re-post/link to a few things I’ve read over time.  No, this is not a way for me to get someone else to write my blog posts for me (although, I guess, they are…so thanks!).  It’s more of a way for me to broaden their messages.  And a way for me to show these writers how much their writing has affected me.  I’ve sent people to their sites multiple times and now I can have a link that my readers can use to find their words.  They’re so impactful. And….I couldn’t have said it better myself. (oh yeah, I went there).

First up: Welcome to Holland.

WELCOME TO HOLLAND

by
Emily Perl Kingsley.

c1987 by Emily Perl Kingsley. All rights reserved

I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this……

When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, “Welcome to Holland.”

“Holland?!?” you say. “What do you mean Holland?? I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.”

But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay.

The important thing is that they haven’t taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It’s just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It’s just a different place. It’s slower-paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around…. and you begin to notice that Holland has windmills….and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy… and they’re all bragging about what a wonderful time they had there. And for the rest of your life, you will say “Yes, that’s where I was supposed to go. That’s what I had planned.”

And the pain of that will never, ever, ever, ever go away… because the loss of that dream is a very very significant loss.

But… if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things … about Holland.

Posted in ASPERGER'S, AUTISM, MOM | Tagged: , , , , , , | Leave a Comment »

 
%d bloggers like this: